Representative cohort of 5,846 adults and 980 minors in Wisconsin
Data from 2,000+ Survey Variables
Topic Areas Include:
Health History
Health-Related Behaviors
Healthcare Access and Use
Covid-19
Mental Health
Objective Health Measures
Social Determinants of Health
Physical and Built Environment
Demographics
The Data Repository holds valuable information about how our environment, behaviors, and experiences impact health. Since 2008 our program has engaged with 6,826 participants in Wisconsin. Each one shared experiences and health histories with us through extensive surveys. This research has generated a data repository of over 2,000 variables covering over 60 research topics. Combined with data linkages to environmental data, such as air pollution maps, publicly available health records like the Wisconsin Cancer Registry, or to the REACH biospecimens, the research possibilities abound.
The Survey of the Health of Wisconsin conducted household-based examination surveys on representative samples of the general population (non-institutionalized) Wisconsin residents in urban, suburban, and rural settings across the state.
Individuals living in the selected households received an advanced mailing to describe the project and trained field staff made visits to screen, enumerate and recruit individuals in the household. Starting in 2019, individuals could also voluntarily provide contact information at community-based events. These individuals were screened as well before being invited to participate. Informed consent was completed at the scheduled, in-home study appointment.
Publications outlining full survey methodologies are available for your review:
The REACH program will share data with qualified researchers in accordance with HIPAA and IRB guidance. We are currently developing our data request and sharing protocols. Please complete the consultation request form to inquire about accessing our Data Repository.
The REACH Program maintains an extensive biorepository of population-based biospecimen. Most of our specimens were collected as part of the Survey of the Health of Wisconsin project between 2008-2023 and are available to qualified researchers.
Our biorepository inventory contains only samples for participants who consented to have samples stored for future unspecified research. Our team is happy to discuss research ideas and share more information about the biorepository as you develop your research questions.
Biospecimens are shipped in a timely manner for immediate testing and reporting on the following metrics:
Complete blood cell count with differential
Serum glucose
Serum cholesterol
Serum high density lipoprotein (HDL) cholesterol
Serum triglycerides
Serum creatinine
Serum glycosylated hemoglobin (hemoglobin A1c)
C-reactive protein (beginning in 2021)
For more details on the available results, please refer to the “Lab Results” survey topic in our Codebooks.
Additional Test Results
We have additional data from investigators who have analyzed our biospecimens for their own research and shared the results back with us. We have laboratory test results for subsets of samples on:
Perfluoroalkyl and polyfluoroalkyl substances (PFAS)
Microbiome
Clostridium difficile (C. diff)
Multidrug resistant organisms (MDROs)
For more information on testing specimen for “C. Diff” and “Drug Resistant Organisms” please refer to those survey topics in our Codebooks. Otherwise, please request a consult if you are interested in these data.
Requesting Samples
The REACH program will share annotated biospecimens with qualified researchers in accordance with HIPAA and IRB guidance. We are currently developing our protocols for sharing annotated biospecimens. Please submit a consultation request if you are interested in accessing our Biorepository.
Fee Structure for Existing Samples Stored in Biorepository
DESCRIPTION
UNIT PRICE
Free Consultation Meeting
$0
Serum (0.5ml aliquots)
$15
Plasma (0.5ml aliquots)
$15
Urine (1.5ml aliquots)
$12
DNA (whole blood, 50 microliter aliquots)
$25
Whole Blood RNA
$25
DNA (stool)
$25
Stool (~1ml aliquots)
$25
Soil (aliquot, volume varies)
$15
High Touch Surface Swabs
$18
Dust (aliquot, volume varies)
$20
Sample Identification Fee
$1500
Additional data request, if applicable
$125 / hr
Biospecimen handling
$90 / hr
Biospecimen shipping (for non-UW requests or shipment to lab), if applicable
TBD
Oversight and Project Management
$90 / hr
Fees and Discounts
Members of the UW Carbone Cancer Center receive a 15% discount on the total Biospecimen quote
Investigators who are not affiliated with UW-Madison are subject to a 15% fee on the total Biospecimen quote
Definitions and Explanations
The sample identification fee covers the data team processing required to identify the sample upon which you want biospecimens for. This fee includes the following variables: gender, age, race/ethnicity, household or individual income or poverty-to-income ratio, education level, sampling frame variables (if applicable), up to two geography variables (urbanicity, county, census tract, etc.), and up to four additional health conditions, behaviors, or other survey data needed to identify the sample to pull biospecimens. Any additional variables needed for analyses or research question will be acquired under a data request and are subject to our data request hourly rate of $125/hr.
The Biospecimen handling covers the time our staff spend pulling the sample, tracking in our Freezerworks software, printing and relabeling samples, completing manifest form and preparing samples (often on wet or dry ice) in coolers for hand-off (pick up) or delivery to you or another lab on campus.
The Biospecimen shipping covers materials needed and shipping costs associated with shipping the samples to location outside of UW-Madison campus. This covers materials and shipping costs. Any additional staff time used to prepare and ship samples will be charged under the handling fee.
Oversight and Project Management costs include the time spent communicating in email, virtual or in-person meetings with REACH staff and you (the requestor), as well as the oversight and decision-making regarding the request, including the QA/QC checks of the data sample identification, biospecimens pull and preparation.
The REACH team includes epidemiologists and data scientists who can assist investigators during study design. We can assist you with the development of project proposals, IRB applications, Data Management and Sharing Plans, analysis plans and manuscript writing.
Study Coordination and Recruitment Across WI
Our trained field staff and project coordinators can handle all logistical aspects, including developing recruitment strategies and materials, coordinating participant schedules and making payments. Our vast experience and personalized communication strategies ensure high participation rate from both urban and rural areas of the state.
Data and Biospecimen Collection
We offer multi-modal survey data collection services, including online (REDCap, Qualtrics), mail, phone, and in-person. Our team is also trained in taking objective physical measurements, phlebotomy and biospecimens collection. We offer an option for biospecimen collection at local sites to maximize convenience and accessibility for participants. We employ rigorous methodologies to gather accurate and reliable data and bring research to all communities across the state.
Data Security and Confidentiality
We prioritize data integrity and confidentiality, adhering to strict protocols to safeguard sensitive information and protect participants’ privacy.
Publishing with REACH Data, Biospecimens or Research Services
If you have used data, biospecimens or research services provided by the Survey of the Health of Wisconsin (SHOW) or Real-world Evidence to Advance Community Health (REACH), please use the following acknowledgement in any resulting publications:
Research reported in this publication was supported by the Real-world Evidence to Advance Community Health (REACH Program). The REACH Program is funded by federal grants (70%) and by nongovernmental sources (30%). The program receives funding from the National Institute of Environmental Health Sciences (U24ES036005) and the National Cancer Institute (P30CA014520) of the National Institutes of Health. The content of this publication is solely the responsibility of the authors and does not necessarily represent the official views of the National Institutes of Health. The authors would like to thank the University of Wisconsin-Madison School of Medicine and Public Health as well as the study participants for their contributions.
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2022
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Self-reported hearing loss is associated with poorer perceived health care access, timeliness, satisfaction, and quality: Findings from the Survey of the Health of Wisconsin
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Individual Nutrition Is Associated with Altered Gut Microbiome Composition for Adults with Food Insecurity
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2022
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Identification of novel plasma lipid markers of cardiovascular disease risk in White and Black women
2022
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Respiratory Function and Racial Health Disparities With Residential Proximity to Coal Power Plants in Wisconsin
Wisconsin Medical Journal
2022
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Exploring financial stress and resource deprivation as barriers to preferred contraceptive use in Wisconsin in 2021
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2022
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Sage Journals
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Changes in Alcohol Consumption during the COVID-19 Pandemic: Evidence from Wisconsin
International Journal of Environmental Research and Public Health (IJERPH)
2021
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Effects of Sequential Prepaid Incentives on Response Rates, Data Quality, Sample Representativeness, and Costs in a Mail Survey of Physicians
Evaluation & the Health Professions
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The adverse metabolic effects of branched-chain amino acids are mediated by isoleucine and valine
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2021
Hii, M. et al.
Respiratory diseases, racial disparities, and residential proximity to coal power plants in Wisconsin, USA: a cross-sectional study
The Lancet Global Health
2021
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Association Between Food Allergy, Psychological Stress, and Allostatic Load
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2021
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A Cautionary Note Regarding Obesity and Young Adult Rectal Cancer
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Active transportation and social capital: The association between walking or biking for transportation and community participation
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Clinical Measures of Allostatic Load in Children and Adolescents with Food Allergy, Depression, or Anxiety
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Assessing the impact of storage time on the stability of stool microbiota richness, diversity, and composition
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2021
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Fish consumption and awareness of fish advisories among Burmese refugees: A respondent-driven sampling study in Milwaukee, Wisconsin
Environmental Research
2021
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Frontiers in Cellular and Infection Microbiology
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Investigating Cumulative Exposures among 3- to 4-Year-Old Children Using Wearable Ultrafine Particle Sensors and Language Environment Devices: A Pilot and Feasibility Study
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2020
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What moves us: Subjective and objective predictors of active transportation
Journal of Transport & Health
2019
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Cross-sectional associations of food insecurity with smoking cigarettes and heavy alcohol use in a population-based sample of adults
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Survey of Radon Testing and Mitigation by Wisconsin Residents, Landlords, and School Districts
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2019
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2019
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Annals of Epidemiology
2018
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2018
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Neighborhood Perceptions and Cumulative Impacts of Low Level Chronic Exposure to Fine Particular Matter (PM2.5) on Cardiopulmonary Health
International Journal of Environmental Research and Public Health
2018
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Exposure to neighborhood green space and sleep: evidence from the Survey of the Health of Wisconsin
Sleep Health
2018
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BMJ open
2018
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Frequency of Eating Out at Both Fast-Food and Sit-Down Restaurants Was Associated With High Body Mass Index in Non-Large Metropolitan Communities in Midwest
American journal of health promotion: AJHP
2018
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Unfairly Treated? Housing Discrimination, Residential Disadvantages and Poor Mental Health in Wisconsin, 2009 to 2011
2017
Schultz, A. A. et al.
Allergic disease associations with regional and localized estimates of air pollution
Environmental Research
2017
Malecki, K. M. et al.
Private-well stewardship among a general population based sample of private well-owners
The Science of the Total Environment
2016
Raymond, M.R. et al.
Associations Between Fish Consumption and Contaminant Biomarkers With Cardiovascular Conditions Among Older Male Anglers in Wisconsin
Journal of Occupational and Environmental Medicine
2016
Mathur, M.B. et al.
Perceived stress and telomere length: A systematic review, meta-analysis, and methodologic considerations for advancing the field
Brain, Behavior, and Immunity
2016
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Perfluoroalkyl substances in older male anglers in Wisconsin
Environment International
2016
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Neighborhood Disparities in the Restaurant Food Environment
WMJ: official publication of the State Medical Society of Wisconsin
2016
Eggers, S. et al.
Obesity Prevalence and Health Consequences: Findings From the Survey of the Health of Wisconsin, 2008-2013
WMJ: official publication of the State Medical Society of Wisconsin
2016
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Health@Home Moves All About the House!
Studies in Health Technology and Informatics
2016
Beyer, K. M. et al.
Perceived Neighborhood Quality and Cancer Screening Behavior: Evidence from the Survey of the Health of Wisconsin
Journal of Community Health
2016
Saiz, A. M. et al.
Food insecurity and cardiovascular health: Findings from a statewide population health survey in Wisconsin
Preventive Medicine
2016
Escaron, A. L. et al.
Developing and Implementing "Waupaca Eating Smart": A Restaurant and Supermarket Intervention to Promote Healthy Eating Through Changes in the Food Environment
Health Promotion Practice
2016
Christensen, K. Y. et al.
Levels of persistent contaminants in relation to fish consumption among older male anglers in Wisconsin
International Journal of Hygiene and Environmental Health
2016
Christensen, K. Y. et al.
Fish Consumption, Levels of Nutrients and Contaminants, and Endocrine-Related Health Outcomes Among Older Male Anglers in Wisconsin
Journal of Occupational and Environmental Medicine
2015
Wahowiak, L et al.
Wisconsin partners create retail toolkits for healthier eating
2015
Shin, J. I et al.
Food insecurity and dyslipidemia in a representative population-based sample in the US
Preventive Medicine
2015
Malecki, K. M. et al.
Oral health equity and unmet dental care needs in a population-based sample: findings from the Survey of the Health of Wisconsin
American Journal of Public Health
2015
Litzelman, K. et al.
The relationship among caregiving characteristics, caregiver strain, and health-related quality of life: evidence from the Survey of the Health of Wisconsin
Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation
2015
Laxy, M., et al.
The association between neighborhood economic hardship, the retail food environment, fast food intake, and obesity: findings from the Survey of the Health of Wisconsin
BMC Public Health
2015
Givens, M. L. et al.
Shiftwork, Sleep Habits, and Metabolic Disparities: Results from the Survey of the Health of Wisconsin
Sleep Health
2015
Christensen, K. Y. et al.
Levels of nutrients in relation to fish consumption among older male anglers in Wisconsin
Environmental Research
2015
Brennan, P. F. et al
Virtualizing living and working spaces: Proof of concept for a biomedical space-replication methodology
Journal of Biomedical Informatics
2015
Dykema, J. et al.
Effects of Sequential Prepaid Incentives and Envelope Messaging in Mail Surveys
Public Opinion Quarterly
2015
Casper, G. R. et al.
vizHOME--A context-based home assessment: Preliminary implications for informatics
Studies in Health Technology and Informatics
2015
Malecki, K. M. et al.
Oral health equity and unmet dental care needs in a population-based sample: findings from the Survey of the Health of Wisconsin.
American Journal of Public Health
2015
Litzelman, K. et al.
The relationship among caregiving characteristics, caregiver strain, and health-related quality of life: evidence from the Survey of the Health of Wisconsin.
Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation
2015
Laxy, M. et al.
The association between neighborhood economic hardship, the retail food environment, fast food intake, and obesity: findings from the Survey of the Health of Wisconsin.
BMC Public Health
2015
Givens, M. L. et al.
Shiftwork, Sleep Habits, and Metabolic Disparities: Results from the Survey of the Health of Wisconsin.
Sleep Health
2015
Brennan, P. F. et al
Virtualizing living and working spaces: Proof of concept for a biomedical space-replication methodology.
Journal of Biomedical Informatics
2015
Dykema, J. et al.
Effects of Sequential Prepaid Incentives and Envelope Messaging in Mail Surveys.
Public Opinion Quarterly
2015
Casper, G. R. et al.
vizHOME--A context-based home assessment: Preliminary implications for informatics.
Studies in Health Technology and Informatics
2015
Malecki, K. M. et al.
Oral Health Equity and Receipt of Needed Dental Care: Evidence from the Survey of the Health of Wisconsin
Am J Public HealtH
2015
Beyer, K. M. et al.
Perceived Neighborhood Quality and Cancer Screening Behavior: Evidence from the Survey of the Health of Wisconsin.
Community Health
2014
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Predictors of Discordance Between Perceived and Objective Neighborhood Data
Ann Epidemiol
2014
Beyer, K. M. et al.
Exposure to Neighborhood Green Space and Mental Health: Evidence From the Survey of the Health of Wisconsin
Int J Environ Res Public Health
2014
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Overall Prescription Medication Use Among Wisconsin Adults: Findings from the Survey of the Health of Wisconsin
WMJ
2014
Cofiño, R., et al.
The Art of Drawing Numbers and Stories in the Air: Epidemiology Information Emotion and Action
J Epidemiol Community Health
2014
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Epidemiologic Study of the C-3 Epimer of 25-hydroxyvitamin D3 in a Population-Based Sample
Clin Nutr
2014
Guerrero, N., et al..
Urban-Rural and Regional Variability in the Prevalence of Food Insecurity: The Survey of the Health of Wisconsin
WMJ
2014
Litzelman, K. et al.
Association between informal caregiving and cellular aging in the survey of the health of wisconsin: the role of caregiving characteristics, stress, and strain
Am J Epidemiol
2014
Litzelman, K. et al.
Role of Global Stress in the Health- Related Quality of Life of Caregivers: Evidence from the Survey of the Health of Wisconsin
Qual Life Res
2014
Malecki, K. M. et al.
The Wisconsin Assessment of the Social and Built Environment (WASABE) A Multi-dimensional Objective Audit Instrument for Examining Neighborhood Effects on Health
BMC Public Health
2013
VanWormer, J. J. et al.
Oral Hygiene and Cardiometabolic Disease Risk in the Survey of the Health of Wisconsin
Community Dent Oral Epidemiol
2013
Hale, L., et al.
Perceived Neighborhood Quality Sleep Quality and Health Status: Evidence from the Survey of the Health of Wisconsin
Soc Sci Med
2012
Guzmán, A. et al.
Evaluating Effects of Statewide Smoking Regulations on Smoking Behaviors Among Participants in the Survey of the Health of Wisconsin
2012
Knobeloch, L. et al.
Perfluoroalkyl chemicals in vacuum cleaner dust from Wisconsin homes
Chemosphere
2012
VanWormer, J. J. et al.
Aspirin for primary prevention of CVD: Are the right people using it?
J Fam Pract
2010
Nieto, F. J. et al.
The Survey of the Health of Wisconsin (SHOW) a novel infrastructure for population health research: rationale and methods