Representative cohort of 5,846 adults and 980 minors in Wisconsin
Data from 2,000+ Survey Variables
Topic Areas Include:
Health History
Health-Related Behaviors
Healthcare Access and Use
Covid-19
Mental Health
Objective Health Measures
Social Determinants of Health
Physical and Built Environment
Demographics
The Data Repository holds valuable information about how our environment, behaviors, and experiences impact health. Since 2008 our program has engaged with 6,826 participants in Wisconsin. Each one shared experiences and health histories with us through extensive surveys. This research has generated a data repository of over 2,000 variables covering over 60 research topics. Combined with data linkages to environmental data, such as air pollution maps, publicly available health records like the Wisconsin Cancer Registry, or to the REACH biospecimens, the research possibilities abound.
The Survey of the Health of Wisconsin conducted household-based examination surveys on representative samples of the general population (non-institutionalized) Wisconsin residents in urban, suburban, and rural settings across the state.
Individuals living in the selected households received an advanced mailing to describe the project and trained field staff made visits to screen, enumerate and recruit individuals in the household. Starting in 2019, individuals could also voluntarily provide contact information at community-based events. These individuals were screened as well before being invited to participate. Informed consent was completed at the scheduled, in-home study appointment.
Publications outlining full survey methodologies are available for your review:
The REACH program will share data with qualified researchers in accordance with HIPAA and IRB guidance. We are currently developing our data request and sharing protocols. Please contact us if you are interested in accessing our Data Repository.
The REACH Program maintains an extensive biorepository of population-based biospecimen. Most of our specimens were collected as part of the Survey of the Health of Wisconsin project between 2008-2023 and are available to qualified researchers.
Our biorepository inventory contains only samples for participants who consented to have samples stored for future unspecified research. Our team is happy to discuss research ideas and share more information about the biorepository as you develop your research questions.
Biospecimens are shipped in a timely manner for immediate testing and reporting on the following metrics:
Complete blood cell count with differential
Serum glucose
Serum cholesterol
Serum high density lipoprotein (HDL) cholesterol
Serum triglycerides
Serum creatinine
Serum glycosylated hemoglobin (hemoglobin A1c)
C-reactive protein (beginning in 2021)
For more details on the available results, please refer to the “Lab Results” survey topic in our Codebooks.
Additional Test Results
We have additional data from investigators who have analyzed our biospecimens for their own research and shared the results back with us. We have laboratory test results for subsets of samples on:
Perfluoroalkyl and polyfluoroalkyl substances (PFAS)
Microbiome
Clostridium difficile (C. diff)
Multidrug resistant organisms (MDROs)
For more information on testing specimen for “C. Diff” and “Drug Resistant Organisms” please refer to those survey topics in our Codebooks. Otherwise, please contact us if you are interested in these data.
Requesting Samples
The REACH program will share annotated biospecimens with qualified researchers in accordance with HIPAA and IRB guidance. We are currently developing our protocols for sharing annotated biospecimens. Please contact us if you are interested in accessing our Biorepository.
Fee Structure for Existing Samples Stored in Biorepository
DESCRIPTION
UNIT PRICE
Free Consultation Meeting
$0
Serum (0.5ml aliquots)
$15
Plasma (0.5ml aliquots)
$15
Urine (1.5ml aliquots)
$12
DNA (whole blood, 50 microliter aliquots)
$25
Whole Blood RNA
$25
DNA (stool)
$25
Stool (~1ml aliquots)
$25
Soil (aliquot, volume varies)
$15
High Touch Surface Swabs
$18
Dust (aliquot, volume varies)
$20
Sample Identification Fee
$1500
Additional data request, if applicable
$125 / hr
Biospecimen handling
$90 / hr
Biospecimen shipping (for non-UW requests or shipment to lab), if applicable
TBD
Oversight and Project Management
$90 / hr
Fees and Discounts
Members of the UW Carbone Cancer Center receive a 15% discount on the total Biospecimen quote
Investigators who are not affiliated with UW-Madison are subject to a 15% fee on the total Biospecimen quote
Definitions and Explanations
The sample identification fee covers the data team processing required to identify the sample upon which you want biospecimens for. This fee includes the following variables: gender, age, race/ethnicity, household or individual income or poverty-to-income ratio, education level, sampling frame variables (if applicable), up to two geography variables (urbanicity, county, census tract, etc.), and up to four additional health conditions, behaviors, or other survey data needed to identify the sample to pull biospecimens. Any additional variables needed for analyses or research question will be acquired under a data request and are subject to our data request hourly rate of $125/hr.
The Biospecimen handling covers the time our staff spend pulling the sample, tracking in our Freezerworks software, printing and relabeling samples, completing manifest form and preparing samples (often on wet or dry ice) in coolers for hand-off (pick up) or delivery to you or another lab on campus.
The Biospecimen shipping covers materials needed and shipping costs associated with shipping the samples to location outside of UW-Madison campus. This covers materials and shipping costs. Any additional staff time used to prepare and ship samples will be charged under the handling fee.
Oversight and Project Management costs include the time spent communicating in email, virtual or in-person meetings with REACH staff and you (the requestor), as well as the oversight and decision-making regarding the request, including the QA/QC checks of the data sample identification, biospecimens pull and preparation.
Active transportation, physical activity and gut microbiome diversity
Biomonitoring of PFAS from the Survey of the Health of Wisconsin (SHOW) and comparison with the National Health and Nutrition Examination Survey (NHANES).
Identification of novel plasma lipid markers of cardiovascular disease risk in white and Black women
REACH can assist investigators at any point in the process of project development, particularly for environmental health and epidemiologic studies. The REACH team includes epidemiologists, study coordinators, phlebotomists, program managers and experienced field staff who can assist you in planning process and support efficient study implementation and data collection.
Study Coordination and Recruitment
We handle all logistical aspects, from developing recruitment strategies to coordinating participant schedules and managing study materials. Our targeted recruitment efforts ensure a diverse and representative sample through personalized communication strategies. With our support, you can focus on the scientific aspects of your research while we ensure seamless operations, leading to meaningful insights and advancements in your field.
Community-Based Phlebotomy and Sample Collection
We bring research to communities around the state. Our staff conduct phlebotomy and biospecimens collection at local sites. In the past, these sites have included community centers, clinics, and churches in over 60 Wisconsin counties. Our local sites maximize convenience and accessibility for participants. This promotes diverse and inclusive research participation.
Data Collection
We offer survey data collection via online, mail, phone and in-person interviewing. Our team is trained in standardized interviewing and computer-assisted interviewing methods, as well as taking standardized physical measurements. We employ rigorous methodologies to gather accurate and reliable data, utilizing both traditional and innovative techniques. We prioritize data integrity and confidentiality, adhering to strict protocols to safeguard sensitive information and protect participants’ privacy.
Research Services Examples
Carbon monoxide awareness and detector use in the state of Wisconsin
Wisconsin microbiome study, a cross-sectional investigation of dietary fiber, microbiome composition and antibiotic-resistant organisms
Fish consumption and awareness of fish advisories among Burmese refugees: A respondent-driven sampling study in Milwaukee, Wisconsin
Publishing with REACH Data, Biospecimens or Research Services
If you have used data, biospecimens or research services provided by the Survey of the Health of Wisconsin (SHOW) or Real-world Evidence to Advance Community Health (REACH), please use the following acknowledgement in any resulting publications:
Research reported in this publication was supported by the Real-world Evidence to Advance Community Health (REACH Program). The REACH Program is funded by federal grants (70%) and by nongovernmental sources (30%). The program receives funding from the National Institute of Environmental Health Sciences (U24ES036005) and the National Cancer Institute (P30CA014520) of the National Institutes of Health. The content of this publication is solely the responsibility of the authors and does not necessarily represent the official views of the National Institutes of Health. The authors would like to thank the University of Wisconsin-Madison School of Medicine and Public Health as well as the study participants for their contributions.
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2024
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Self-reported hearing loss is associated with poorer perceived health care access, timeliness, satisfaction, and quality: Findings from the Survey of the Health of Wisconsin
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Respiratory Function and Racial Health Disparities With Residential Proximity to Coal Power Plants in Wisconsin
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Exploring financial stress and resource deprivation as barriers to preferred contraceptive use in Wisconsin in 2021
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2022
Grupe, Daniel W. et al.
Perceived stress associations with hippocampal-dependent behavior and hippocampal subfield volume
Neurobiology of Stress
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Malecki, Kristen M. C. et al.
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Pomazal R. et al.
Changes in Alcohol Consumption during the COVID-19 Pandemic: Evidence from Wisconsin
International Journal of Environmental Research and Public Health (IJERPH)
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Dykema, Jennifer et al.
Effects of Sequential Prepaid Incentives on Response Rates, Data Quality, Sample Representativeness, and Costs in a Mail Survey of Physicians
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The adverse metabolic effects of branched-chain amino acids are mediated by isoleucine and valine
Cell Metabolism
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2021
Hii, Michael et al.
Respiratory diseases, racial disparities, and residential proximity to coal power plants in Wisconsin, USA: a cross-sectional study
The Lancet Global Health
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2021
Ersig, Anne L.; Brown, Roger L.; Malecki, Kristen
Association Between Food Allergy, Psychological Stress, and Allostatic Load
Western Journal of Nursing Research
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Peterson, Kent J. et al.
A Cautionary Note Regarding Obesity and Young Adult Rectal Cancer
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Stroope, Jessica
Active transportation and social capital: The association between walking or biking for transportation and community participation
Preventive Medicine
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2021
Ersig, Anne L.; Brown, Roger L.; Malecki, Kristen
Clinical Measures of Allostatic Load in Children and Adolescents with Food Allergy, Depression, or Anxiety
Journal of Pediatric Nursing
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2021
Holzhausen, Elizabeth A. et al.
Assessing the impact of storage time on the stability of stool microbiota richness, diversity, and composition
Gut Pathogens
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Malecki, Kristen et al.
Population Changes in Seroprevalence among a Statewide Sample in the United States
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Merten, Natascha et al.
Mental Health and Well-Being Among Individuals With a Sensory Loss During COVID-19 Lockdown Measures
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Schultz, Amy A et al.
The Population-based Microbiome Research Core: a longitudinal infrastructure for assessment of household microbiome and human health research
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He, Xiaofei et al.
Fish consumption and awareness of fish advisories among Burmese refugees: A respondent-driven sampling study in Milwaukee, Wisconsin
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Safdar, Nasia et al.
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Holzhausen, Elizabeth A. et al.
A Comparison of Self- and Proxy-Reported Subjective Sleep Durations With Objective Actigraphy Measurements in a Survey of Wisconsin Children 6-17 Years of Age
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Kates, Ashley E. et al.
Household Pet Ownership and the Microbial Diversity of the Human Gut Microbiota
Frontiers in Cellular and Infection Microbiology
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Brown, Heidi W. et al.
Reasons Behind Preferences for Community-Based Continence Promotion
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Schultz, Amy A. et al.
Investigating Cumulative Exposures among 3- to 4-Year-Old Children Using Wearable Ultrafine Particle Sensors and Language Environment Devices: A Pilot and Feasibility Study
International Journal of Environmental Research and Public Health
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2020
Gorzelitz, Jessica S.; Malecki, Kristen M.; Cadmus-Bertram, Lisa A.
Awareness of Physical Activity Guidelines Among Rural Women
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Wisconsin Office of Children's Mental Health
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Prescribed Opioid Use in Wisconsin 2008-2016: Findings From the Survey of the Health of Wisconsin
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Bergmans, Rachel S. et al.
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Understanding the physical activity needs and interests of inactive and active rural women: a cross-sectional study of barriers, opportunities, and intervention preferences
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Street-level neighborhood greenery linked to active transportation: A case study in Milwaukee and Green Bay, WI, USA
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Exposure to neighborhood green space and sleep: evidence from the Survey of the Health of Wisconsin
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2018
Martinez, Y
Unfairly Treated? Housing Discrimination, Residential Disadvantages and Poor Mental Health in Wisconsin, 2009 to 2011
2017
Schultz, Amy A.; Schauer, Jamie J.; Malecki, Kristen Mc
Allergic disease associations with regional and localized estimates of air pollution
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2017
Malecki, Kristen M. C. et al.
Private-well stewardship among a general population based sample of private well-owners
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Neighborhood Disparities in the Restaurant Food Environment
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2016
Casper, Gail R. et al.
Health@Home Moves All About the House!
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2016
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Perceived Neighborhood Quality and Cancer Screening Behavior: Evidence from the Survey of the Health of Wisconsin
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Food insecurity and cardiovascular health: Findings from a statewide population health survey in Wisconsin
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Levels of persistent contaminants in relation to fish consumption among older male anglers in Wisconsin
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Fish Consumption, Levels of Nutrients and Contaminants, and Endocrine-Related Health Outcomes Among Older Male Anglers in Wisconsin
Journal of Occupational and Environmental Medicine
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2015
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Wisconsin partners create retail toolkits for healthier eating
2015
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Food insecurity and dyslipidemia in a representative population-based sample in the US
Preventive Medicine
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Oral health equity and unmet dental care needs in a population-based sample: findings from the Survey of the Health of Wisconsin
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The relationship among caregiving characteristics, caregiver strain, and health-related quality of life: evidence from the Survey of the Health of Wisconsin
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The association between neighborhood economic hardship, the retail food environment, fast food intake, and obesity: findings from the Survey of the Health of Wisconsin
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Shiftwork, Sleep Habits, and Metabolic Disparities: Results from the Survey of the Health of Wisconsin
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Environmental Research
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Virtualizing living and working spaces: Proof of concept for a biomedical space-replication methodology
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Dykema, J
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vizHOME--A context-based home assessment: Preliminary implications for informatics
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Malecki, Kristen et al.
Oral health equity and unmet dental care needs in a population-based sample: findings from the Survey of the Health of Wisconsin.
American Journal of Public Health
10.2105/AJPH.2014.302338
2015
Litzelman, Kristin et al.
The relationship among caregiving characteristics, caregiver strain, and health-related quality of life: evidence from the Survey of the Health of Wisconsin.
Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation
10.1007/s11136-014-0874-6
2015
Laxy, Michael et al.
The association between neighborhood economic hardship, the retail food environment, fast food intake, and obesity: findings from the Survey of the Health of Wisconsin.
BMC Public Health
10.1186/s12889-015-1576-x
2015
Givens, Marjory L. et al.
Shiftwork, Sleep Habits, and Metabolic Disparities: Results from the Survey of the Health of Wisconsin.
Sleep Health
10.1016/j.sleh.2015.04.014
2015
Brennan, Patricia Flatley et al.
Virtualizing living and working spaces: Proof of concept for a biomedical space-replication methodology.
Journal of Biomedical Informatics
10.1016/j.jbi.2015.07.007
2015
Dykema, J.
Effects of Sequential Prepaid Incentives and Envelope Messaging in Mail Surveys.
Public Opinion Quarterly
10.1093/poq/nfv041
2015
Casper, Gail R. et al.
vizHOME--A context-based home assessment: Preliminary implications for informatics.
Studies in Health Technology and Informatics
2015
Malecki K et al.
Oral Health Equity and Receipt of Needed Dental Care: Evidence from the Survey of the Health of Wisconsin
Am J Public HealtH
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